Neuropsychologists call for elimination of race-norming in clinical tests following NFL concussion controversy

ABC News

December 2, 2021

The American Academy of Clinical Neuropsychologists, the professional organization that sets standards and practices for the field of neuropsychology, has called for “the elimination of race as a variable in demographically-based normative test interpretation,” the controversial practice widely known as race-norming.

The move comes amid a firestorm of criticism following an ABC News investigation of alleged racial bias in the National Football League’s landmark concussion settlement program. ABC News uncovered emails and data suggesting race-based adjustments to former players’ cognitive test scores made it more difficult for Black former players to qualify for compensation from the league for head injuries sustained on the field of play.

In a position statement provided to ABC News, the AACN acknowledged fundamental flaws with race-norming and signaled its support for the development of new testing protocols in neuropsychology that do not rely on race as a proxy for environmental influences that lead to inequity.

“Indeed, sampling of racial minority populations in the U.S. has been limited and inconsistent when creating neuropsychology test norms,” the statement’s authors wrote. “Use of unrepresentative norms can result in diagnostic error, as well as stigmatization of minority populations based on supposed disparities in neuropsychological ability.”

Last March, the federal judge overseeing the NFL concussion settlement ordered the league and attorneys for former players into mediation to “address the concerns” about the use of race-norming. After several months of confidential negotiations, the NFL in October agreed to abandon the practice and reevaluate past claims for compensation that may have been impacted by race-based adjustments.

Sources familiar with the matter told ABC News that the deal could result in hundreds of millions of dollars of additional compensation for former players and their families.

In the coming weeks and months, parallel efforts to engage neuropsychological experts in the development of new testing practices that seek to eliminate racial bias will be underway.

The AACN has pledged to “advance and support the necessary work to make this complex transition possible,” which could include raising public and private funds and partnering with test development companies and other scientific organizations. The group cautioned, however, that progress will be slow and require patience from the public, as “simple solutions will not suffice to solve problems that were centuries in the making.”

The NFL, meanwhile, has committed to funding the continued work of a panel of experts developing what it calls “a set of diagnostically accurate, race neutral, long-term norms” that will ultimately replace the current method of measuring cognitive impairment in former NFL players seeking compensation.

They hope to deliver a solution within a year of the implementation of the new settlement agreement, which is still awaiting final approval by a federal judge.

There is at least one point of overlap between those two efforts: Dr. Anthony Stringer, who recently retired from the neuropsychology department at Emory University, is serving as the chairman of the AACN subcommittee on the use of race in neuropsychological test norming and performance prediction — and is also serving, according to multiple sources familiar with the matter, on the NFL-funded panel of experts developing the replacement norms for the future evaluation of former players.

In response to questions from ABC News, Stringer confirmed his involvement in both groups and said that while there is “no coordination” between the them, there is “open communication.”

“The [AACN] Position Statement mentions the need for partnerships to address the complex challenge of replacing the use of race in neuropsychological evaluations,” Stringer told ABC News. “I think there is an opportunity for future partnerships with interested parties like the NFL.”

The neuropsychology community is just the latest branch of medicine to reckon with its use of race in diagnostic testing and clinical care. In response to public pressure and congressional oversight, a number of leading medical societies and institutions have also pledged to review or amend their policies to reflect an evolving consensus that race-norming can be harmful to Black patients.

Cy Smith, an attorney who represents Kevin Henry and Najeh Davenport, the former NFL players who filed the original lawsuit alleging that the league’s protocols skewed concussion payouts along racial lines, hailed the development as “long overdue,” but noted that actual change has yet to be made.

“We are pleased to see that our lawsuit and the vital oversight of the Court in the NFL Concussion Settlement has pushed the psychology profession to revisit the use of ‘race norms,’ alongside other health care providers,” Smith told ABC News. “But the next step is just as important — any replacement norms must be fair, and not be used to limit the claims of Black football players, or other people of color.”

Dorothy Roberts, the founding director of the University of Pennsylvania Program on Race, Science and Society, said that while criticism of race-norming is hardly a new development, the current level of public attention is unprecedented.

“The idea of adjusting medical tests for race is deeply rooted in the history of racism in America and has been contested for a long time,” Roberts told ABC News. “But the recent controversy surrounding the NFL, coupled with new research being done, is galvanizing a groundswell of opposition that I hope will lead to abolishing race correction throughout medicine.”

Equipment Standards News

View All
  • Study Finds Wearable Neck Sensor Could Predict Concussion Risk in Contact Sports
    June 30, 2022

    Sport TechieJune 24, 2022 Sensor-laden neck wearables may be more efficient at measuring and predicting concussions in contact sports, according to a new study published Thursday in Scientific Reports. Without naming a specific brand of wearable, the research conducted by Michigan State professor Sepúlveda Alancastro and a doctoral student Henry Dsouza determined that neck devices […]

    Read more
  • A Diagnosis Brings C.T.E. Into American Pro Soccer
    June 30, 2022

    The New York Times June 28, 2022 Scott Vermillion’s family members still struggle to articulate the jumble of emotions they felt last November when they received the phone call from the doctors. Vermillion, a former M.L.S. player, had died almost a year earlier, on Christmas Day in 2020, at age 44. The direct cause was […]

    Read more
  • Association of APOE Genotypes and Chronic Traumatic Encephalopathy
    June 30, 2022

    JAMA Network June 27, 2022 Key Points Question: Are APOEε4 and ε2 associated with chronic traumatic encephalopathy (CTE) neuropathology and related endophenotypes? Findings: In this genetic association study of 364 brain donors with repetitive head impact exposure from contact sports or military service (294 with and 70 without neuropathologically confirmed CTE), APOEε4 was significantly associated with CTE stage and […]

    Read more

Leave a Reply

Your email address will not be published. Required fields are marked *